Steering Committee

The committee is responsible for reviewing all requests for data from the registry.

List of Steering Committee members

Dr Michela Guglieri (Chairperson)

Dr Guglieri is a Senior Clinical Lecturer and Neuromuscular Consultant at Newcastle University. She leads the clinical research team which is currently involved in over 30 studies over the past 5 years. Duchenne UK collaborated with 5 patient organisations to award a 5-year lectureship to Dr Guglieri in 2015. 

Emma Heslop 

Emma Heslop is the DMD Hub manager and is funded by Duchenne UK. She has been part of the John Walton Muscular Dystrophy Research Centre at Newcastle University since October 2006, when she joined the TREAT-NMD Neuromuscular network of excellence.